Kentucky designates May 17th as DIPG Awareness Day

After losing their son Michael to Diffuse Intrinsic Pontine Giloma (DIPG) on May 17th, 2015, Mark and Jenny Mosier have dedicated their lives to bringing awareness and funding to make a difference and to Defeat DIPG. Just one year after his death, they were successful in bringing about DIPG Awareness Day in the state of Maryland.

What the Mosier’s didn’t know on this day in 2016 is what lay ahead and that a conversation with Nick Smith would be the catalyst to making this so much more. Through the hard work and persistence of Nick and Brittany Smith of Smile for Brooklyn, along with so many others supporting them, Kentucky would become just one of 18 other states to join Maryland in making this important designation in the hopes of changing the future for families who face this dire diagnosis.

Find the full list at DIPG Awareness Across the Map

This bitter sweet day comes just 20 days after their ‘sunshine’ was called home to the Lord. The hard work put in while Brooklyn was still with them now pays off in such a powerful way to stand up in the midst of heartache and continue to be Brooklyn’s voice in the hopes that other families won’t face the outcome they’ve now found to be their reality.

This Friday, May 19, 2017, Nick and Brittany Smith will travel to Frankfort, KY to proudly stand with Governor Bevin to make this Proclamation official. They will be joined by numerous individuals who played important roles in their lives and this process. Joining the Smith’s to stand side by side for this important event will be their family, other DIPG families (some currently fighting, some in honor of) as well as:

We would also like to acknowledge Jack’s Angel’s Foundation for their incredible efforts to get this passed at the federal level through H. Res. 69- DIPG Awareness Resolution in U.S House of Representatives.

Nick and Brittany Smith and the Smile for Brooklyn team extends their incredible gratitude to the waves of people who have stood by and supported them throughout their journey over the past 16+ months. Please continue to fight for #MoreThan4 and most of all, continue to #SmileForBrooklyn.

View the Proclamation here:
Sunshine is so excited!

Our Brooklyn is now home with the Lord

It is with a heavy heart that we confirm the passing of Brooklyn “Brookie” Nicole Smith, 6 years old, of Erlanger, Kentucky. Brooklyn passed away peacefully in her mother’s arms on Thursday, April 27, 2017 at Cincinnati Children’s Hospital Medical Center, with her family at her side. Brooklyn was a beautiful and strong little girl. Despite being diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) just 7 days after her 5th birthday, she retained the remarkable ability to smile through it all. She attended St. Joseph Academy in Walton, Kentucky, is an active member of the DIPG Collaborative, a member of the Lakemont Community, and the 2016 Hyde Park Blast Ambassador. The family would like to thank the community for their support during this difficult journey. They especially would like to thank the doctors, nurses, and staff at Cincinnati Children’s Hospital Medical Center for the excellent care and attention that was shown to her.

At this time, we ask all Smile for Brooklyn supporters to send communications through Smile for Brooklyn via our contact page or on Facebook. Please do not contact Brooklyn’s parents directly during their time of healing.

Further information will be available on the funeral home’s website: www.stithfuneralhomes.com.


 

In lieu of flowers

The family requests that memorials take the form of donations to:
Smile for Brooklyn
PO Box 18852
Erlanger, KY 41018

Other ways to contribute can be found on our Support page.

Smile for Brooklyn on talk radio

January 12th, 2017 was a special day! Brooklyn’s father, Nick, was joined by Jenny Mosier (#defeatDIPG), Lawrence Fagan (retired medical researcher / DIPG advocate), and Keren Beukema (recently lost her son Vincent to DIPG) as a guest on Childhood Cancer Talk Radio. The discussion centered around a resolution intended to designate May 17th as National DIPG Awareness Day; a day set annually to bring awareness to the most deadly pediatric brain tumor that currently has no known cure.

CLICK HERE FOR THE PODCAST

More about DIPG Awareness Day

In 2016, May 17th was proclaimed DIPG Awareness Day in Maryland by Governor Larry Hogan in honor of Michael Mosier, lost to DIPG on this day the year prior. During a conversation, Nick Smith, Brooklyn’s father, brought the idea to Jenny Mosier that he would like to do the same here in the state of Kentucky. This conversation became the catalyst for the desire to make this a nationwide designation.

We hope you join us in support and hope. Download / listen to the podcast and offer a prayer and a smile for Brooklyn and all children who face this fight against DIPG.

How will you give on this Giving Tuesday?

#GivingTuesday, the Tuesday in November following the US day marked for giving thanks, is a movement to create a day to kick off the holiday season with a heart for others; a heart for giving.

This day can be marked in a number of ways: through service to others, a financial gift to support a cause close to your heart, making a change in your life on this day to impact others in the days and months to come.

Here at Smile for Brooklyn, we hope you will consider our mission with your plans for #GivingTuesday. We have a number of ways to support us, some of which only require a few moments of your time without affecting your finances or your already limited time. Some methods of support include:

  • Designating us as your charity of choice with KrogerCommunityRewards.com or Remke.com‘s Caring Neighbor program.
  • Shopping through our AMAZON.COM links and banners on our site. (Select the link here and you are all set to shop and support us!)
  • Our GoFundMe account found HERE.

For these and more ways, we encourage you to check out our SUPPORT PAGE and, if you have questions, reach out to us!

Above all, we want you to know today and always how much we appreciate your support, your friendship, your love, and of course, your #SmileForBrooklyn.

Support SFB with Amazon

**** JUST IN TIME FOR THE HOLIDAYS!! ****

We are so excited to have this extension as a way to help bring in more funds for Smile for Brooklyn just in time for the holiday season!!

By shopping through our AMAZON.COM links and banner ads on our site, we will receive an portion of your sale. All you need to do to make this happen is come to our site and click on the link / banner and once your order processes, Smile for Brooklyn will receive a commission on the sale (when you order through our link / ad). There is no additional cost or work on your part.

We would be so grateful to you for remembering Smile for Brooklyn when doing your holiday shopping and any shopping you do throughout the year.

To shop now, SELECT THIS AMAZON.COM LINK or the banner ad on this page and shop ’til you drop!

For this and more ways to support Smile for Brooklyn, visit our SUPPORT PAGE.

*This post contains an affiliate link.*